Monday, November 3, 2008

Michelle named as one of the 3 most important people in US and global healthcare to have died in October

Today I learned that the Editor-in-Chief of Health Affairs, the leading journal of healthcare policy and the main source of healthcare information for those on Capitol Hill, named three individuals who died in October whose "lives underscore the importance of improving health and healthcare worldwide." One was a Dean of Columbia University's School of Public Health for over 2 decades, one was a congressman who chaired the House Health subcommittee and championed a myriad of health reforms, and the third was my wife.

Michelle often wondered whether what she did was actually touching anyone, whether she really did make a difference in the vast often immovable sea of healthcare. For those of you who have read her blog, you already know the answer inside each of you. Now, so does the world.

http://healthaffairs.org/blog/

Bill Steinbach

81 comments:

*Akilah Sakai* said...

That's just wonderful...

AWARENESS!

amymackin said...

Seriously, Michelle's fame is getting ridiculous. :)

Did you see the article about scleroderma on CNN.com, where readers were adding comments about Michelle at the bottom?

Amy

Annie said...

bill,

that is awesome. i love the fact that michelle's story/message is getting out there.

hope all is well.

*annie.

Larry said...

Hello, family,

Last year my son was in a class with one of Michelle's friends sons. That is how I found this blog.
The Catholic mother's network at STM brought my family dinners when my fourth son was born.
The connection between the two is this: I joined the CMN to bring other mother's food. This year, we moved about 40 min. away from STM and I had planned to join another group.

I believe that God's hand is always setting events in motion. I feel He has been planning for me to know your wife and mom. He does work in mysterious ways and sometimes that may mean meeting over the internet on the first and only blog I've ever read. I feel as though I've lost a dear confidante and fellow mother (although the things that made her Michelle can never really die).
How I plan to honor her life is this: I am staying on the CMN, in fact I have just signed up for three new mommies. Each meal I prepare will be with God working through my hands to honor your Michelle. Each one from here on will be with Michelle's memory on my heart and delivered with praise, joy and respect for her short time here on earth.
I realize that this is a small thing: it's just that I have had my Heavenly Father whispering in my ear to do this and I want so much for Michelle's spirit to live on through this small gesture.
I hope this is okay with you. If it isn't, you can respond and I will stop.
My heart goes out to you. You are in my prayers.
His,
Jenn Switzer

CathiFSU said...

Bill, thank you for continuing to provide us with updates. You owe us nothing (especially those like me, who know your family only because we were lucky enough to stumble upon Michelle's blog), and it is kind of you to share these things with us. I still think of Michelle every day. I can't tell you how many times I have heard in my head: "Is this the memory you want to make?" Her words have helped me be a better mother, and a better person. Thanks again,

Cathi

Julieann said...

I got chills when I read that. When I see an update here, I smile--I miss Michelle and all her posts here--and I just adore the pictures you have put up top.

((Gentle Hugs, Mishelle's family)))

M said...

Thanks for continuing to sharing her story and updates. She seemed to have been an amazing person. I think it's great how you honor her in life and in death. I bet the world will have some wonderful things to say about the person that you are too.

Shan said...

It is still so strange to realize that she is gone... and yet, six months ago I didn't even know she was alive.

You and your family have been in my thoughts these past few weeks. I think about Aidan and Amelia quite a bit and hope that they are able to find peace and happiness again.

As Cathi said, you owe us nothing, but thank you for what you have shared.

Shan

Linda Crispell said...

She made a tremendous impact on the world.
Linda

Terri said...

Congratulations to Michelle! What a wonderful and fitting trbute.
Continued prayers,
Terri

JC Heery said...

Hi Bill, What an awesome honor to her and to you! She truly was an advocate for herself, scleroderma patients and to patients everywhere! I think of you and the kids every morning when I wake up and say a prayer for you. Today's sunrise was spectacular and I immediately thought of Michelle and her photographic talents--I grabbed my camera before its beauty faded away and said a prayer for her and you and all your loved ones. Be well and thank you for letting us know of this amazing tribute to Michelle. Love, Jennifer

Lori said...

Bill,
Thank you so much for letting us know this. I love the pictures you put up too. Michelle is still, and will always be, a huge part of many lives!

Carl said...

that's greatt great bill. thanks for updating the site. Been checking it to see if anything new was posted. I hope you are all doing well.

Chip said...

Bill,
How touching and how well-deserved. Of course you should not overlook the obvious and forget that she could not have done what she did without you. You both suffered and triumphed together. And we who received so much her life, owe you a big debt of gratitude, too.

Thoughts are with you and the children.
Take Care,
Chip

Ana's World said...

And she goes on helping. Love, Ana

Alice Lynne said...

Bill,
From what I have read about Michelle, she deserves this honor. Thank you for sharing this with us and you and your children continue to be in my thoughts and prayers.

Sue R said...

That's pretty amazing. I'm glad you posted that. I still check back here to see if anything new has been posted. I really like the addition of the pictures at the top. God bless you and your kids.

desert dirt diva said...

And so she lives on, that is so great...
Hope all is well with you and the kids....

Ellen said...
This comment has been removed by the author.
Ellen said...

Sorry about the duplicate messages. Michelle would have laughed at all of my typos in the first one :)

Thanks for sharing this with us, Bill. That's just wonderful news for sure!

God bless you all~

Ellen

Shan said...

I hope the memorial service went well.

Shan :+)

Wanda said...

OH How I miss reading Michelle's daily updates. I hope and pray that Bill, Amelia, and Aidan are doing as well as can be expected. My heart aches for each of you. I never knew your wife & mother, but I miss her so much, so I can only imagine the huge hole that has been left by her passing. She was amazing, incredibly wise, & Just Amazing. She accomplished so much in her short time than most do with 2x her lifespan. I thank God for everyday that she had to share with Bill, Amelia, & Aidan, and I thank God that Michelle shared her last few months of her battle with the world. I am grateful for all of the words that she left, although I wished she could've started several years ago. Such a truly gifted writer, such an intelligent woman, such a beautiful person INSIDE & OUT, such a loss for the family, such a loss for the world!!! Bill please consider making Michelle's words into a book? And Could someone from the family, not necessarily Bill (I know he is so busy) Please let all of us know how everyone is doing? We understand that they wish to grieve in private, but just an occasional update on the family, would be so nice. Like it or not, we really love each of you, because of Michelle. We will never meet you, but our hearts are with you, because of Michelle. So we won't just stop caring just because Michelle is with Jesus right now. We All will continue to think about the 3 of you and continue to pray for your Peace of Mind and well being, especially thru the Holidays. And May you find some Joy this Christmas, in Christ Jesus. My words can never express how deep my sorrow is for you. May the Peace of God be With ALL OF YOU.
Love & Prayers,wj

allison said...

bravo!

Lana said...

Just wanted to say to Bill I hope your family is doing well this holiday season.
I wish you, Amelia and Aidan all the best. If you haven't already, may you find comfort and peace.

Angie said...

Bill, just wanted to drop you a line from a stranger. You and the kids are in my thoughts always. Take care of each other.

Diane said...

I barely knew Michelle and am a stranger to the rest of her family, but I have read much of her blog. I wanted you to all know that you were in my thoughts this holiday season. Thinking of your family and the difficult year(s) you have endured has helped make me more aware of the blessings in my own life. Please know that Michelle's message and the impact of her life is still felt in so many more places than you may know. Thank you for your honesty and for sharing so much of your lives with so many of us.

Chelsea said...

bill, i hope you and the kids are hanging in there. i think of michelle and your family often. although i never met michelle, i felt like i knew her and now i miss her. take care.

LMP said...

I just wanted to let you know that I still think of Michelle and the lessons she taught me about how precious life is. I only knew her through her blog but I miss her and her wonderful words. I do hope you and the kids are doing well.

Caroline said...

Hi Bill...just wanted to send regards & prayers to you and the kids. I think of Michelle often and am so grateful for her blog, her lessons and her beautiful life. Was just back East visiting my family in NE Philly & drove past Nazareth Academy and though again of Michelle. Although I never met her, our lives had such interesting commonalities. May God be with all of you always - I know Michelle is your angel in Heaven.
Take Care,
Caroline

Misti Hall said...

This is an amazing blog. So many words of wisdom about life and the things that matter most.

I never knew Michelle in person...but, I came here often to read her post (still come here on occasion to re-read something). I know she has touched many people through this blog. She has touched my life and inspired me to continue on the path of my passion.

Bill I hope you, your children, family and friends are doing okay. Wishing you all peace, comfort and hope.

Misti

marry said...

Blogs are so informative where we get lots of information on any topic. Nice job keep it up!!
_____________________________

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Johnny's mom said...

I cannot believe it's been a year this week. I never met Michelle and I think of he very often. She taught me so much about love , life and parenting. I miss her so much.

瘋狂的 said...

good post................................................

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冠樺冠樺 said...

來給你加油打氣!!!保重!!! .........................................

雅琳 said...

It's great!!..........................................

明偉誠秋 said...

喜樂的心是健康良藥,憂傷的靈使骨枯乾。........................................

Mrs. MisUnterstood said...

Michelle and her blog were mentioned today on CNN http://www.cnn.com/2010/HEALTH/04/27/blog.terminal.illness/index.html?hpt=C1

And on a side note, Bill, I would like an opportunity to speak to you about scleroderma. My grandmother passed away in December (2009) from it. There is a lot I don't understand.

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Tara said...

Wow! What a powerful blog! I wish I found this a year ago. I lost my mom to scleroderma in June 2009. We are coming up to our year anniversary and I just can't believe it. A lot of what she wrote about towards the end is what my mom experienced. She had a hard time breathing and needed an oxygen tank. Like Michelle, my mom lived every day with a smile on her face and love in her heart, always hoping for more days to LIVE! I am so touched! My mom lived with the disease for 25 years and died at the age of 63. She was blessed to know all 5 of her grandchildren and spoiled each one rotten. There is so much not known about scleroderma but we really need to be hopeful in finding a cure for this cruel disease!

Kristy said...
This comment has been removed by the author.
Rocky said...

I suffer from a chronic, severely disabling pain syndrome called RSD, Reflex Sympathetic Dystrophy or CRPS as it was changed to in the mid 1990, and stands for Complex Regional Pain Syndrome. There is no cure, only a lifetime of pain, contractures, infections and anything else it can throw at us, and finally all the goodies the pain docs have in their bag of tricks no longer work.

I have become a difficult patient over the years, not by choice, but by the similar reasons Michelle gave. We want someone to take time with us, listen to what we are telling them, have them understand exactly what we deal with on a daily basis, and in today's environment of healthcare, unless you are rich or a star and become a VIP patient, yes they do exist, and I have had my own physicians actually leave the examining room to take a call by a VIP patient, and it's extremely frustrating.

Supposedly, the dye they use in MRI's can cause her disease, I now refuse to have any MRI's with that dye because for the most part, I have learned over the 18 year battle with this disease that has taken over my whole body, anything that can go wrong, does, and it's very frustrating. So why tempt fate?

Our disease, as recent research has learned, now kills our brain cells. I have to chuckle to maintain my sanity by telling myself, it's a good thing we only use 3% of our brain cells anyway.

We have learned it now attacks our internal organs, much like Lupus does and I recently had a friend who has suffered from RSD/CRPS more years than I have, suffer two heart attacks recently. And in my family, we don't have much cancer, but the heart is the weak link.

Oh great I tell myself, if this disease doesn't do me in, the side effects from it will.

I just came across this site tonight and found her story compelling, interesting and one I could relate to, being a difficult patient. I usually have to change PCP's between the two to three year mark when they hit the wall as I call it. They feel there is nothing more they can do for me, except dump me on someone else. And that hurts more than anything. What happened to the code they took to do no harm? It apparently went out the window as soon as they started having patients come in with often difficult, some terminal patients and patients like me, tired of dealing with pain, tired of having to change doctors every two to three years, who have to deal with multiple Referrals both on my PCP's account, but most at my persistant requests. I have managed to keep my pain management docs because they are used to patients like me, but an Internist or Family Medicine doc hasn't. Even their Medical Assistants are difficult to deal with, and I have a new PCP who is nice, but she has one MA who gives new meaning to the term "B _ _ _ _ H". I don't get along with her, as hard as I try, I am at the point already of having to take notes as we talk, and will soon have to buy a cheap recorder and inform her our conversation is being recorded for her benefit as well as mine. Can't wait to hear her response to that.

May God be with Michelle. I don't know if her syndrome is painful initially but do know as it progresses, that her internal organs will begin to harden if they haven't already, and having to struggle to breathe and hope your heart keeps pumping has to be frightening. And being a Mother to children, has to be difficult. How do you tell your children Mommy is dying?

Well Michelle, thanks for the little I have read about you, I just happened onto this link and read only a small part of your story and am anxious to read more, because when it comes to difficult patients, my personality precedes me when changing to a new PCP.

CasandraC文行 said...

要保持更新呦,加油!!!期待你的新文章!!!........................................

品華yur1095is_newson1 said...

thank for share, it is very important . ̄︿ ̄

嵇ImogeneL_Spielman said...

「不可能」這個字詞,在聰明人的字典中是找不到的。.............................................

JesseniaT_Or怡臻ndorf said...

不要把生命看得太嚴肅,反正我們不會活著離開。..................................................

MickiRueda said...

路過--你好嗎..很棒的BLOG...................................................

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宥妃 said...

Lets cross the bridge when we come to it............................................................

esthermelvin said...

這麼優的部落格,不踩一下不開心 ........................................

張孟勳 said...

你的部落格不錯哦,我來享受一下~~ ........................................

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李映 said...

要持續更新下去喲!!祝你心情愉快.................................................................

志宏 said...

成熟,就是有能力適應生活中的模糊。....................................................................

韋以韋以 said...

幸福不是一切,人還有責任。.................................................................

靜宸靜宸 said...

人生是故事的創造與遺忘。............................................................

芳容222許林堅林芳容儀 said...

當一個人內心能容納兩樣相互衝突的東西,這個人便開始變得有價值了。............................................................

雲亨雲亨雲亨 said...

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Practice makes perfect.............................................................

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............................................................

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凱v胡倫 said...

很用心的部落格 路過留言支持 ................................................

Sam said...

Bill,

That was a beautifully written post. Although it was written years ago, I just stumbled across this blog and am really looking forward to reading it from the beginning. I lost my mom to ovarian cancer in December 2008 right before my 20th birthday. In October of that year she was given between 2 days and 2 months to live. She made it the entire two months and wrote a journal for my brother and I about her life. As much as I love every word, I hope that Michelle's blog gives me some insight on death that my mom was trying to protect me from. I hope you still check in and get a chance to read my message!

Sam

Holy Crappers said...

I followed Michelle's blog years ago and would love toknow how Bill and the children are doing????

AL

沈貞李添睿儀 said...

我只知道,假如我去愛人生,那人生一定也會回愛我................................................

麗王王珠 said...

當一個人內心能容納兩樣相互衝突的東西,這個人便開始變得有價值了。............................................................

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學而時習之,不亦樂乎˙ω˙............................................................

國林林林林維 said...

^^ 謝謝你的分享,祝你生活永遠多彩多姿!............................................................

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Christy said...

Bill,

Although I am a stranger to you, I followed Michelle's clear-eyed, touching, funny, sad, and relentlessly honest blog. The world is a better place for having had her in it.

Two years on, I hope you and your kids are happy and healthy. Your family is in my thoughts.

-Christy

Dori said...

Michelle,

You would have turned 42 last week. I still miss you. I miss our heated debates, hearty laughs, excellent meals and silent moments. I am glad you are at rest and peace and that I can still "visit" when I need to. Happy Birthday, Love ya!

Dori
PS...thanks for shaking my bed.

DonnaB said...

Hi Bill,

Thinking of Michelle today 3 years after her death. Still miss her.

Donna

DonnaB said...

Thinking of Michelle today 3 yrs after her death. Still miss her.

Donna

Dawn said...

I first found Michelle's blog four years ago when I was facing a serious health crisis, and I read everything she wrote in an afternoon. My health has since improved, but I have to tell you that the lessons I learned from Michelle still enrich my life on a daily basis. I just finished my third reading of this blog. Though I never had the privilege of meeting her, Michelle has touched my life in so many important ways and I am so grateful to her and to you for keeping her writings available. I hope you and your family are very happy and doing well.